Parent Leadership Hub Weekly
E-Newsletter
Parent Leadership Hub Weekly E-Newsletter for April 29, 2010
This week's update is provided by WSPEI and WI FACETS to share statewide information regarding parent leadership and family involvement. Please visit the Parent Leadership Hub web page of the SPDG website at http://www.wispdg.org/pl.html for the current and archived weekly updates and to find information on these topics:
- WSPEI website: http://dpi.wi.gov/sped/parent.html
- WIFACETS website: http://www.wifacets.org
- Resources- Product Order Form, and Educational Materials for Parents
- Calendar of Events
- Multi-Media Resources- Workshops Online, Video Series, and Webcasts
The Parent Leadership Hub supports parents/family members, educators and other community partners to build capacity regarding meaningful family involvement. The Hub serves three primary purposes:
(1) To support parents of children with disabilities between birth and 26 years of age to participate as partners in the professional development activities of each of the other Statewide Initiatives as they design, deliver and support professional development experiences; and
(2) To facilitate opportunities for parents/family members to build leadership skills; and
(3) To provide Content Focused technical assistance concerning family involvement.
Please, direct any questions to the PL Hub Co-Facilitators:
Mary Skadahl, WSPEI Statewide Project Director at 715-829-8932 or marys@cesa12.k12.wi.us
Dawn Wians, WI FACETS SPDG Coordinator at 608-827-5234 or dwians@wifacets.org
Deadline for submitting contributions to each week's issue is Tuesday noon. For time sensitive training advertisements, the information should be sent a minimum of two weeks prior to the event date; ideally a month ahead of time. Material appropriate for the weekly newsletter include web links to sources of family involvement/parent leadership resources and advertisements for statewide trainings for parents, youth or parent/educator audiences (we don’t post research articles, reports or news opinion articles). Your submittal may not be in the final copy if it was in a previous weekly email, the event date has passed or the web link doesn’t work. Please, send submittals to phyllis@banbury.com
NOTE: Note: If you would like to receive this weekly update or if you would like to have your name removed from the distribution list, please contact Mary Skadahl or Dawn Wians.
'Just in Time Information' Now Available
A new online repository of information is available for parents, youth and professionals who are searching for articles previously posted to the PL Hub Weekly E-Newsletters since October 2008. This repository of information will help the reader locate valuable information by topic, 'just in time'. Currently, there are web pages for 'Transition to Adult Life' and 'Family Involvement'. Future web pages will include 'Early Childhood' and 'School-Age Years'.
For our reader's convenience, all archived issues of the E-Newsletter will eventually be re-posted on the 'Just in Time Information' page of the PL Hub website. We hope this format will help our readers quickly access the resources they need, when they need them, and that it will be visited frequently. Additions are always welcome! To submit suggested resources and training products, simply follow the instructions and criteria provided in the introduction to each of the PL Hub Weekly Updates.
To visit the new 'Just in Time Information' web page go to: http://www.wispdg.org/pl/resources.html
Parent/Personnel Development Opportunities
- Transitioning from Pediatric to Adult Health Care: A Free Workshop for Teens and Their Parents in Green Bay
What: A workshop for teens (14-21) that will focus on:
~ How to become more involved in managing your healthcare
~ How to set up appointments
~ How to talk with your doctor
~ How to care for yourself when you are sick
A workshop for parents that will focus on:
~ Helping your teen become more involved in their healthcare
~ Building transition skills for both you and your teen
~ Decision making
When: Wednesday, May 5th 2010, 5:00- 7:30pm at CESA #7, 595 Baeten Road, Green Bay, WI. For directions through road construction, see http://www.cesa7.k12.wi.us/
Evening will begin with a networking dinner
This is a free workshop. Participants will receive dinner as well as a transition workbook and pocket guide. To Register or for more information please call Crystal Heeg at (920)-969-5328, or toll free at (877) 568-5205. Please indicate the following: Age and number of participants attending, any food allergies or precautions. Sponsored by the Northeast Regional Center for Children and Youth with Special Health Care Needs, CESA 7 and WSPEI (Wisconsin Statewide Parent Educator Initiative) - Stout Vocational Rehabilitation Institute Open House & Informal Tour – May 10
Stout Vocational Rehabilitation Institute Invites Transition-age Students, their Families/Friends and Educators to attend their Open House & Tour on:
Monday, May 10, 2010 from 6:00 p.m. to 8:00 p.m. at UW-Stout, Vocational Rehabilitation Building, 221-10th Avenue East, Menomonie, WI
Participants will learn how SVRI can help with evaluations for:
Community Living Functional/Vocational Evaluation Driver Simulator Adaptive Driving, Seating/Mobility Computer Access Hearing/Vision Loss
Objectives of the Tour: Provide information about individualized evaluations and their purpose, discuss how assistive technology creates opportunities for greater independence, broaden understanding of the rehabilitation process and possibilities and respond to questions related to your individual situation. Join for this no-cost opportunity to learn about SVRI services to assist with career choice and life planning. Space is limited, and registration is accepted on a first-come, first-served basis. For more information, contact Jennifer Gundlach Klatt, (715) 232-2236 or email: gundlachj@uwstout.edu. Register On-Line today at: http://www.prestoregister.com/cgi-bin/order.pl?ref=piersona&fm=5
E-mail confirmations with further information will be sent to you upon registration.
Visit www.uwstout.edu/svri for more information. - WI Community on Transition Youth Leadership and Development Gathering
Presented By: The Community on Transition Youth Development and Leadership Group Affiliated with the National Community of Practice on Transition
June 24, 2010 from 9:00 a.m. - 1:00 p.m.at the Madison Area Technical College ~ Truax Campus, Room # 322, 3550 Anderson Street, Madison, WI 53704
For youth, parents, teachers, transition coordinators, and anyone interested in transition
-Introduction of the Wisconsin Youth First Website www.wiyouthfirst.org
-Youth self determination panel presentations
-The First Annual Outstanding Youth Leader Award
-Technology Demonstrations
-Sports demo
-MATC Tour
-Networking Opportunities
*Meeting space will be available in the afternoon for each practice group.
Please register at www.wsti.org - Exploration by Design: How CAD Works
A Free Day Camp for High School Students being held at the University of Wisconsin-Madison – August 9-13, 2010
Learn how Computer aided Design, or CAD, is used to design and produce products. Design your own product and then actually produce it using a rapid prototype machine. This five-day immersion day camp for high school students takes place from 8 a.m.—noon on August 9-13 at the University of Wisconsin-Madison. Space is limited to 15 students. Attendance is open to students with disabilities currently in grades 8-11. Click here to apply: http://stemmidwest.org/default.asp?contentID=597
Family Involvement Resources
- Nomination for Outstanding Wisconsin Youth Leader Award
The Wisconsin Community on Transition Youth Development and Leadership is pleased to announce the First Annual Outstanding Youth Leader Award. This year's award will be presented to a Wisconsin Youth Leader who has gone above and beyond in demonstrating self-determination and self-advocacy in one of the focus areas within the Wisconsin Community on Transition. Nominees are being accepted from each practice group. The Youth Development and Leadership Practice Group will determine the winner and notify him or her to attend the Wisconsin Community on Transition meeting in Madison on June 24th for an award ceremony. This year's recipient will receive a plaque and a 64 Gigabyte iPod.
To submit a nomination: Please provide the young person's name, city and telephone number, plus a short description of the individual's contributions, affiliations, and/or involvements which warrant the receipt of this year's award. Age limitation: Please limit nominations to individuals who are between 15-25 years of age. Please send your nomination to Cheryl Schiltz at cheryls@ilcw.org by May 10, 2010. - Financial Assistance for Students with Down Syndrome
Financial assistance is available to young adults with Down syndrome who want to enroll in post-secondary programs or take classes that will help them with employment, independent living and life skills. To date, over thirty students have received grants from the National Down Syndrome Society (NDSS) to help cover the costs of pursuing their post-secondary education and enrichment goals. The 2010 application form http://www.ndss.org/images/stories/NDSSresources/pdfs/
2010%20application%20form.pdf can be downloaded in PDF format. Application deadline is July 16, 2010 - Health Care Act Provisions Information for Families of Youth with Disabilities
The recently passed Health Care Reform Act will affect people with disabilities and their families. Two provisions include prohibiting insurance companies from denying coverage to children based on pre-existing conditions and allowing parents to keep adult children on their insurance plans until age 26. PACER's Technical Assistance on Transition and the Rehabilitation Act (TATRA) Project has developed a list of provisions of interest to families of children and youth with disabilities. http://www.pacer.org/tatra/pdf/healthcareact2010.pdf - Resources from 2009 Fall Self-Directed Supports Conference
Visit the WI Board for People with Developmental Disabilities'(WBPDD) Self-Determination Conference Page for access to all of the resources from the 2009 conference at http://www.wi-bpdd.org/whoweare/2009_Events/selfdetermination.cfm
Individuals with disabilities, direct-care workers and self-determination advocates all contributed to the self-determination stories. View all 23 stories on the Wisconsin Board for People with Developmental Disabilities' YouTube Channel at http://www.youtube.com/user/WBPDD, or go to www.youtube.com and search "wbpdd". Save the date of November 9-10, 2010 at the Kalahari Resort in Wisconsin Dells for the next conference featuring keynote presentations, workshop sessions and exploration stations. - Creating Agreement Resources
The IDEA Partnership's Creating Agreement Workgroup has developed a gallery of new resources which included the "Building Partnerships, Creating Agreement" PowerPoint presentation and accompanying presenter guide, dialogue guides, and other resource materials. To review the resources, click here:
http://www.directionservice.org/cadre/CreatingAgreement.cfm - Summer Camp Opportunities
Many summer camp opportunities are available to Wisconsin youth. The Wisconsin Center for Academically Talented Youth offers programs that focus on one subject at an accelerated pace. Programs start in grades 4-6 (held at Beloit College), include grades 7-8 (at Edgewood College), and culminate with a high school program that gives students an opportunity for rigorous study of a high school or college level topic (at UW-Madison).
UW-La Crosse offers archaeology workshops for grades 1-9 and for adults. Different classes explore archaeology in general as well as ancient cultures of the Americas. Three-day and one-week field schools offer the chance to dig a little deeper.
Concordia Language Villages offers immersion programs in a wide range of languages and cultures, from Arabic to Finnish. The group writes: "Geography, history, political science and international relations are drawn on, creating learning situations that challenge participants to use language as a tool for understanding the complexities of the world around them."
The website, MySummerCamps.com, has a searchable list of thousands of camps all over the world, including special needs camps, adventure camps, arts camps, sports camps, and many other categories. - Audio Series on Autism from the American Academy of Pediatrics
The American Academy of Pediatrics (AAP) has launched a new audio series, entitled Sound Advice on Autism, which includes audio interviews with developmental and behavioral pediatricians, a pediatric neurologist, autism researchers and parents of children with autism. It is available online at http://www.aap.org/audio/autism/
DISCLAIMER
Inclusion of information in this e-mail does not constitute an endorsement by the Wisconsin Statewide Parent-Educator Initiative, Wisconsin FACETS, the Department of Public Instruction, the U.S. Department of Education, or the U.S. Department of Health and Human Services.
